Tagged : ME/CFS Blog Archive

Personal writing on living with Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS) and ME/CFS. These posts cover symptoms like post-exertional malaise (PEM), day-to-day management, sleep and pacing, NHS specialist care and the UK ME/CFS Delivery Plan, disability benefits, and honest reflections on chronic illness.

Written from lived experience in the UK. updated regularly — browse the full list below, newest first.

Free tool

  • ME/CFS Activity Plan With local browser storage and easy to print as PDF - suitable to send to ME Clinic staff as I did in 2026.

18 total tagged.

Spontaneous Remission of ME/CFS in 2026 // 1038 words on 31 July 2026.
Do you sleep at an incline // 58 words on 30 June 2026.
Call it Fuckity Cockwomble // 422 words on 29 June 2026.
Heat Wave and ME // 343 words on 24 June 2026.
Calling Chronic Illness Bloggers // 86 words on 11 June 2026.
Language for when the body is broken // 326 words on 7 April 2026.
Disabled people face lower benefits if not lifelong // 179 words on 1 April 2026.
A Review of ME specialist provision on the NHS // 1087 words on 28 March 2026.
Incidence of ME peaks in adolescence or early middle age // 123 words on 24 March 2026.
Empty Stands - Fans with ME+ // 165 words on 19 March 2026.
How fast did ME develop for you? // 94 words on 24 February 2026.
Covid fraud cost UK taxpayer £10.9 billion // 97 words on 9 December 2025.
Quoting Reddit user on giving up work // 208 words on 12 August 2025.
Phone battery issues // 318 words on 29 July 2025.
Boost in support for patients with chronic fatigue syndrome or ME // 343 words on 27 July 2025.
Gov.UK Issues Presser on ME/CFS Delivery Plan // 29 words on 27 July 2025.
Post-Exertional Malaise - The Key Sign of ME/CFS // 274 words on 29 June 2025.
5-Day Low Histamine Vegan Meal Plan // 381 words on 4 May 2025.