WeakNotes 2026-07-25

It’s been a strange time since my last update, I had been suffering from a stomach bug and lost all appetite, consuming nothing but sips of water over 4 days. I’ll spare some of the other details.

This situation coincided with a heightened emotional state, but also what has become an overnight miracle.

I no longer have the severe light aversion that has left me spending most of my time in a small dark room with reduced whitepoint on devices by 85-95% and the other sensory irritations have subsided. My pain (all of the nerve, muscular and bone stabbing and pulsating pains) has lessened to negligible levels too, and my body feels “normal”.

So much so, I have been outside my home 3 times in a week compared to just once in the prior 7-8 or so months. None of these events incurred the PEM tax that is typically due either with ME - this is usually a delayed onset and exacerbation of previous symptoms and the general unwell, poisoned feeling and symptoms akin to a flu. I have also returned to sleeping in a bed rather than a chair.

I guess this is remission, a false dawn perhaps, but I’m going to grab this opportunity with both hands and hope it lasts. Today I have tidied up the garden including mowing the lawn and some weeeing, fixed a couple of small DIY jobs and been able to use my Mac to catch up on a few things. I have also contacted work about a phased return.

It’s a miracle. I still have some symptoms remaining and

• I Found someone had produced a Zwift API client in Python on GitHub and so I was able to use this and pull all my historical rides and store them each as Markdown files with front matter in a Jekyll collection.
• Signing a footballer for over £100m is ludicrous but it is what the market can bare, but it’s about time the government had a 10% tax on football transfers paid by the buying club - a sort of wealth tax.

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