Confidential health records UK BioBank exposed
This is fine.
UK Biobank, which holds the medical records of 500,000 British volunteers, is one of the world’s most comprehensive stores of health information and is credited with driving breakthroughs in cancer, dementia and diabetes research. But scientists approved to access Biobank’s sensitive data appear to have sometimes been cavalier about its security.
Last month, the government extended Biobank’s access to volunteers’ GP records.
The issue emerged because journals and funders increasingly require researchers to publish the code they have used to analyse large datasets. When intending to upload code, some researchers have also accidentally published partial or entire Biobank datasets to GitHub, a popular online code-sharing platform. UK Biobank prohibits researchers from sharing data outside their systems and says it has introduced further training for all researchers.
In the past year, the data leaks appear to have become a more urgent concern to UK Biobank. Between July and December 2025, it issued 80 legal notices to GitHub, which has complied with requests to remove data from the internet. Yet much still remains available.
The spokesperson added that Biobank had taken extensive measures to protect participants’ privacy, including proactively searching GitHub, contacting researchers directly and issuing legal takedown notices, actions which they said had led to about 500 repositories being removed. Many of these, it said, contained only patient IDs, not health data.
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